Friday, May 20, 2016

May 20 med list

May 20, 2016 Med list

In food batch-
Selinium 2 drops in food
Vitamin D- 4 drops

In every 300mls of food he gets-

10 mls of Citic K (one package of citric K spread out over 24 hours)
7 mls of Sodium bicarbonate

If retching, put everything in jtube

AM- 

In G tube
  • Keppra- 250 mg (1 blue tablet) 
  • Topamax- 100mg (1 large white tablet) 
  • Probiotic - do not use if blood in poop 

In J tube 
  • Vimpat- 25 mg (1/2 oval pink tablet) 
  • Zantac 18.75mg/.25 tabs
  • propranolol- 10 mg= 1 tablet
  • Carnitor 1/2 tab

Rectally
Flagyl 120mg= 24ml

Afternoon in j-tube
  • propranolol- 10 mg= 1 tablet
  • prevacid 7.5 mg
  • Nano VM- 1.5 full scoop per day (slowly give it over day)

PM-

In G tube
  • Topamax- 100mg (3/4 large white round tablet) 
  • Keppra- 250 mg (1 blue tablet) 
  • Carnitor 1/2 tab
In J tube 
  • Vimpat- 50 mg (1 oval pink tablet) 
  • Erythromycin- 62.5
  • Zantac 18.75mg/.25 tabs
  • propranolol- 10 mg= 1 tablet

Rectally
mesalamine 2,000 mg= 30ml
Flagyl 120mg= 24ml

Not taking right now
  • Erythamicin- 62.5
  • Cyproheptadine- 

Monday, March 28, 2016

April Plan and Questions

https://docs.google.com/document/d/1cYzvvfNJo9cdfdLv0MLEKvGVQ9DeqdCLYp--r8iQEh0/edit

Friday, March 11, 2016

Hospitalization Record

11/13/14-12/5/14

Birth
Prelim diagnosis
Hirschspungs pull through surgery 11/16

1/27/15

Enterocolitus

March-
Seizures started
EEG
Keppra

4/21/15
Enterocolitus
Started prevacid

May-
Tried zonegran

6/9/15-7/15
Rhino virus
Pneumonia from aspiration from swallowing difficulties
Infantile spasms
Status elipticus
g/j tube
Strated onfi
topamax
Stopped zonegran


Oct (2 times)
Bloody stool
replace g/j because it came out
pnemonia

11/4/15-11/18/16
Pneumonia
Nava breathing

12/25-12/31/15
Electrolyte imbalance because of constant retching and throwing up

1/5/16
Replaced g/j tube
outpatient surgery

2/2/16-2/13/16
Pneumonia due to retching aspiration
Heliox





Friday, March 4, 2016

New G/J Tube Info

Mic-key low profile
16 french
22 cm

Need to be replaced every 3-4 months
Call in 4 months (july)

Kirby Meyer
207-987-2341

Wednesday, March 2, 2016

Forumla Recipe- 3/1/16 DO NOT USE

3.25 760 calories

10 amino acids
23 elecare
137 microlipids
845 wtare

50ml/20 hrs
60ml flushes
1060 total fluids

Monday, February 29, 2016

March 28, 2016 Med list

In food-

One package of citric K spread out over 24 hours
Nano VM- 1 full scoop per day
Selinium 2 drops in food
Sodium bicarbonate 1/2 tsp spread out over 4 times/day
Vitamin D

If retching, put everything but onfi in jtube

AM- 

In J tube 
  • Probiotic - do not use if blood in poop 
  • Vimpat- 25 mg (1/2 oval pink tablet) 
  • Topamax- 75mg (1 large white tablet) 
  • Erythamicin- 62.5
  • propranolol- 10 mg= 1 tablet

In G tube
  • Keppra- 250 mg (1 blue tablet) 
  • .5ml of clobazam (onfi)(liquid)  
  • prevacid 7.5 mg
  • Zantac 18.75mg/.25 tabs
  • Cyproheptadine- 1/4 tablet 
Rectally
Flagyl 120mg= 24ml

Afternoon in j-tube
  • Erythromycin- 62.5
  • propranolol- 10 mg= 1 tablet

PM-

In J tube 
  • Vimpat- 50 mg (1 oval pink tablet) 
  • Topamax- 75mg (3/4 large white round tablet) 
  • Keppra- 250 mg (1 blue tablet) 
  • Erythromycin- 62.5
  • propranolol- 10 mg= 1 tablet

In G tube
  • Zantac 18.75mg/.25 tabs
  • .5ml of clobazam (onfi)(liquid) 
  • Cyproheptadine- 1/4 tablet
Rectally
mesalamine 2,000 mg= 30ml
Flagyl 120mg= 24ml

Questions

Carnitor
Nano VM

Frankie overall plan for March

https://docs.google.com/document/d/10A79blaJvM3Pq9wY9AYmyyAvrRMZ_YRvr_uW_cuv2Ms/edit