We went into the hospital on Thursday, 2/25/16 because of bloody stool.
Sat- 2/20 pain crying in am, we gave tylenol still crying
Sun 2/19 Still crying, in pain
Mon- lots of crying and discomfort
Tues- diarrhea started after a very good therapy apt, pink blood started
Wed- diarrhea continues, blood increases (dropped of stool sample at hospital)
Thurs- Blood continues, dr A says to go to hospital
Start IV flagyl and zosin
xray shows pnemosis
ultrasound shows kidney stone
stop food
Fri-
continue iv antibiotics
xray the same
BOB 4
Sat 2/27
couldnt tolerate 50ml/hr
specks of blood in stool
Sun 2/28
less blood, stayed at 20ml/hr
started oral flagyl
tylenol for pain every 4 hours
lots of moaning and crying
Mon 2/29
Added 10 ml poweraide zero to 20ml/food
Still showing discomfort with anything going into J
Heartrate shot to 190 when screaming at 11pm, but quickly passed
Tues 3/1 HEART ISSUES
Heart rate started jumping around, even though has calm and sleeping.
Got a couple of EKGs
Topic Atrial Tachycartia with runs of superventrical tachy
There is a conduction problem due to structural issues, but maybe not something you have to treat.
If sustained SVT for more than 30 minutes then you would treat. Could do a beta blocker to reduce future cases of this, but it is cost benefit analysis.
Maybe a monthly thing.
Took him off Cyproheptadine, and it stopped. Could be coincidence. Will start Cypro again while in the hospital and see if it happens again.
Fri 3/4 ENDOSCOPY
Shuskin saw irritation in the stomach, could be increased stomach acid. He saw irritation below too, probably a sign of enterocolitus. Since Flagyl is working, this could have gotten a lot better since we got here.
Will know more when we get biopsys back on Mon or Tues.
He did not see any signs of Bacterial overgrowth.
The disk on old G/J tube had totally failed. Kirby has done 1000 of these and this has never happened. He will send pics to the manufacturer to see if they have any reasons this may have happened. Had to put in a new tube. Normally Kirby would be worried about his size and putting this in, but bc they had the camera down, they could see that it worked for his anatomy.
This shouldn's have caused any pain or blood in stool.
. No t
Mon.Tues- the endoscopy didn't show much except irritation due to acid build up and enterocolitis. Added Erythmicin. Still blood in stool.
Wed- Changed forumula to medium chain fats to make it easier to absorb. Some pink blood in stool.
Thurs- no blood in stool. No gagging and retching, just some coughing. Doing pretty well.
Fri- 5 am hypertarchadia that is lasting 3 hours. Moved to ICU, starting propropinol drip. Stopping Cyproheptadine. Started proprpinol.
3/24- did an anorectal anometry and found pressures were 20, so botox would not help the situation.
Also did a flex sigmondoscopy. Inflamation and redness looked better. Also, she determined that the colon was short and not really inflamed at all. Dr. A believes that the mesalamine is working, and we should just keep with that plan.
He has one whole week of no retching and gagging.
MIC-Key low profile Transgastric Jejunal Feeding Tube
16F
22 CM
